'Do you have proof your son is disabled?'

As a family we need and love our holidays because of the underlying heartbreak we live with every day as we watch our son's muscles waste away. Eventually it will be impossible for us to take Jack on holiday and make the precious memories we cherish with him.

Incompetence and error at Jet 2 holidays has ruined our holiday.

When we arrived at Split airport and attempted to check in, we were told by a clearly stressed check in desk operative that they had no records of Jack, his disability or his requirements. The operative then informed us that two days' notice is required to be able to put a motorized wheelchair/scooter on the aircraft and that we might not be able to fly.

The operative then asks: 'Do you have proof your son is disabled?'

I didn't know whether to be sarcastic and say no he loves to ride a disability scooter and pretends to be disabled for fun, or to cry and shout he has a bloody terminal muscle-wasting condition.

The only reason I kept my cool was that I could see the embarrassment and anxiety rising in Jack. The indignity of the situation was awful. He was crying and saying I just want to go home to my Grandma's.

We painfully have to talk about the full extent of Jack's condition in front of him. The highlight is me having to show the check in operative his blue disabled badge to prove he is disabled. The poor kid wanted the ground to eat him up.

We spent almost two hours between the check in desk and the disabled waiting area. My husband and my younger son, who is six, had to find wheelchairs to sit in.

As a mother my job is to protect and nurture my child. Yesterday I had to stand by and watch as he was completely humiliated. Jet 2 have accepted full responsibility for what happened to him. It was their error and they have apologised.

I don't want the money. I feel on principle I would rather let everyone know what happened to Jack and how he has been left feeling humiliated and demoralised by the incident. I want lessons to be learnt from the way he was treated so it never happens to anyone again.

Lessons must be learnt from this and I do think Steve Heapy and Jet 2 holidays should hang their heads in shame.