Five years on

It's strange to think that five years ago, Andy and I had never heard the words Duchenne Muscular Dystrophy. Joining Jack and Duchenne UK didn't exist.

What really drives me forward is the acute awareness that time is running out.

I hate the nights he cries before he goes to sleep because his legs hurt or because he's frightened of what his future holds.

We have expanded our mission, building clinical trial infrastructure, investing in research, and advocating for every patient — not just Jack. What transformed the survival rates for childhood leukaemia is our model.

Joining Jack has announced a partnership with Duchenne UK — a collaboration between two driven parents committed to accelerating treatment access for everyone living with Duchenne.